International Journal of Medical Informatics
Volume 75, Issue 1 , Pages 8-28 , January 2006

Influences, usage, and outcomes of Internet health information searching: Multivariate results from the Pew surveys

References 

  1. Cline RJ, Haynes K. Consumer health information seeking on the Internet: the state of the art. Health Edu. Res. 2001;16(6):671–692
  2. In:  Rice RE,  Katz JE editor. The Internet and Health Communication. Thousand Oaks, CA: Sage; 2001;
  3. Katz JE, Aspden P. Networked communication practices and the security and privacy of electronic health care records. In:  Rice RE,  Katz JE editor. The Internet and Health Communication. Thousand Oaks, CA: Sage; 2001;p. 393–416
  4. Katz JE, Rice RE. Social Consequences of Internet Use: Access, Involvement and Interaction. Cambridge, MA: MIT Press; 2002;
  5. Fox S, Fallows D. Internet Health Resources. Washington, DC: Pew Internet and American Life Project; 2003;http://www.pewinternet.org
  6. Fox S. Health Information Online. Washington, DC: Pew Internet and American Life Project; 2005;http://www.pewinternet.org
  7. Fox S, Rainie L. Vital Decisions. Washington, DC: Pew Internet and American Life Project; 2002;http://www.pewinternet.org
  8. Horrigan J, Rainie L. Getting Serious Online. Washington, DC: Pew Internet and American Life Project; 2002;http://www.pewinternet.org
  9. Licciardone J, Smith-Barbaro S, Coleridge S. Use of the Internet as a resource for consumer health information: results of the second osteopathic survey of health care in America (OSTEOSURV-II). J. Med. Internet Res. 2001;3(4):e31;http://www.jmir.org/2001/3/e31
  10. Eng TR, Mayfield A, Gustafson D. Access to health information and support: A public highway or a private road?. JAMA. 1998;280(15):1371–1375
  11. Mead N, Varnam R, Rogers A, Roland M. What predicts patients’ interest in the Internet as a health resource in primary care in England?. J. Health Serv. Res. Policy. 2003;8(1):33–39
  12. Davis JJ. Disenfranchising the disabled: The inaccessibility of Internet-based health information. J. Health Commun. 2002;7(4):355–367
  13. Fox S, Rainie L. The Online Health Care Revolution. Washington, DC: Pew Internet and American Life Project; 2002;http://www.pewinternet.org
  14. Coleman JS. Social capital in the creation of human capital. Am. J. Sociol. 1988;94:95–120
  15. P. Bourdieu, The forms of capital (R. Nice, trans.), in: J.G. Richardson (Ed.) Handbook of Theory and Research for the Sociology of Education, Greenwood Press, New York, 1986, pp. 241–258.
  16. Putnam RD. Bowling Alone: The Collapse and Revival of the American Community. New York: Simon and Schuster; 2000;
  17. Johnsen TE. Social context of mobile phone use of Norwegian teens. In:  Katz JE editors. Machines that Become Us. New Brunswick, NJ: Transaction Books; 2003;p. 144–167
  18. Kollock P, Smith MA. Communities in cyberspace. In:  Kollock P,  Smith MA editor. Communities in Cyberspace. London: Routledge; 1999;p. 3–25
  19. Magdol L, Besser DR. Social capital, social currency, and portable assets: The impact of residential mobility on exchanges of social support. Pers. Relationships. 2003;10(2):149–169
  20. Beniger JR. The personalization of mass media and the growth of pseudo-community. Commun. Res. 1987;14(3):352–371
  21. Calhoun CJ. Computer technology, large-scale societal integration and the local community. Urban Affairs Quar. 1986;22:329–349
  22. Crow G, Allan G, Summers M. Neither busybodies nor nobodies: managing proximity and distance in neighborly relations. Sociology. 2002;36(1):127–145
  23. Gergen KJ. The Saturated Self: Dilemmas of Identity in Contemporary Life. New York: HarperCollins; 1991;
  24. Turkle S. Virtuality and its discontents: Searching for community in cyberspace. Am. Prosp. 1996;26:50–57
  25. Aspden P, Katz JE. Assessments of quality of health care information and referrals to physicians: a nationwide survey. In:  Rice RE,  Katz JE editor. The Internet and Health Communication. Thousand Oaks: Sage; 2001;p. 99–106
  26. Celio AA, Winzelberg AJ, Wilfley DE, Eppstein-Herald D, Springer EA, Dev P, et al. Reducing risk factors for eating disorders: comparison of an Internet- and a classroom-delivered psychoeducational program. J. Clin. Psychol. 2000;68(4):650–657
  27. McKay HG, King D, Eakin EG, Seeley JR, Glasgow RE. The diabetes network Internet-based physical activity intervention: a randomized pilot study. Diab. Care. 2001;24(8):1328–1334
  28. Paterniti DA, Price MD, Goodman T. Trajectories of Health, Illness, and Care: Women and Breast Cancer. Washington, DC: American Sociological Association (ASA) Annual meeting; August 1999;
  29. Rice RE. The Internet and health communication: A framework of experiences. In:  Rice RE,  Katz JE editor. The Internet and Health Communication. Thousand Oaks, CA: Sage; 2001;p. 5–46
  30. Rice RE. The Internet and health communication: an overview of issues and research. In:  Lee P,  Leung L,  So C editor. Impact and Issues in New Media: Toward Intelligent Societies. Cresskill NJ: Hampton Press; 2003;p. 173–204
  31. Preece JJ, Ghozati K. Experiencing empathy online. In:  Rice RE,  Katz JE editor. The Internet and Health Communication. Thousand Oaks, CA: Sage; 2001;p. 237–260
  32. Sharf BF. Communicating breast cancer on-line: support and empowerment on the Internet. Women Health. 1997;26(1):65–84
  33. Till JE. Evaluation of support groups for women with breast cancer: Importance of the navigator role. Health Qual. Life Outcomes. 2003;1(1):16
  34. Wellman B. Lay referral networks: using conventional medicine and alternative therapies for low back pain. In:  Kronenfield JJ editors. Research in the Sociology of Health Care 12. Greenwich: JAI Press; 2003;(1995 retrieved 25 July 2003) http://www.utoronto.ca/CAMlab/publications/index.html
  35. Wikgren M. Health discussions on the Internet: a study of knowledge communication through citations. Lib. Inform. Res. 2001;23:305–317
  36. Winzelberg AJ, Classen C, Alpers GW, Roberts H, Koopman C, Adams RE, et al. Evaluation of an Internet support group for women with primary breast cancer. Cancer. 2003;97(5):1164–1173
  37. Scherrer-Bannerman A, Fofonoff D, Minshall D, et al. Web-based education and support for patients on the cardiac surgery waiting list. J. Telemed. Telecare. 2000;6(Suppl. 2):S72–S74
  38. Murero M, D’Ancona G, Karamanoukian H. Use of the Internet by patients before and after cardiac surgery: telephone survey. J. Med. Internet Res. 2001;3(3):e27;http://www.jmir.org/2001/3/e27
  39. Diaz JA, Griffith RA, Ng JJ, Reinert SE, Friedmann PD, Moulton AW. Patients’ use of the Internet for medical information. J. Gen. Internal Med. 2002;17(3):180–185
  40. R.E. Rice, J.E. Katz, Internet use in physician practice and patient interaction, in: M. Murero, R.E. Rice (Eds.), The Internet and Health Care: Theory, Research and Practice, Lawrence Erlbaum Associates, Mahwah NJ, 2006, in press.
  41. Zeng Q, Kogan S, Plovnick R, Crowell J, Lacroix E-M, Greenes R. Positive attitudes and failed queries: an exploration of the conundrums of consumer health information retrieval. Int. J. Med. Inform. 2004;73:45–55
  42. Berland G, Elliott M, Morales L, Algazy J, et al. Health information on the Internet: accessibility, quality, and readability in English and Spanish. JAMA. 2001;285(20):2612–2621
  43. Williams P, Nicholas D, Huntington P, McLean F. Surfing for health: user evaluation of a health information website; Part two: fieldwork. Health Inform. Lib. J. 2002;19(4):214–225
  44. Kunst H, Groot D, Latthe P, Latthe M, Khan K. Accuracy of information on apparently credible websites: survey of five common health topics. BMJ. 2002;324(9):581–582
  45. Craigie M, Loader B, Burrows R, Muncer S. Reliability of health information on the Internet: an examination of experts’ ratings. J. Med. Internet Res. 2002;4(1):e2;http://www.jmir.org/2002/4/e2
  46. Culver J, Gerr F, Frumkin H. Medical information on the Internet: A study of an electronic bulletin board. J. Gen. Internal Med. 1997;12(8):466–471
  47. Consumers International, Websites providing misleading information, NUA Internet Surveys, http://www.nua.com/surveys/index.cgi?f=VS&art_id=905358520 (November 4, 2002).
  48. Currò V, Buonuomo PS, De Rose P, Onesimo R, Vituzzi A, D’Atri A. The evolution of web-based medical information on sore throat: A longitudinal study. J. Med. Internet Res. 2003;5(2):e10;http://www.jmir.org/2003/2/e10
  49. Potts HW, Wyatt JC. Survey of doctors’ experience of patients using the Internet. J. Med. Internet Res. 2002;4(1):e5;http://www.jmir.org/2002/1/e5
  50. Rose S, Bruce J, Maffulli N. Access the Internet for patient information about orthopedics. JAMA. 1998;280(15):1309;[1 page only]
  51. Veronin MA. Where are they now? A case study of health-related web site attrition. J. Med. Internet Res. 2002;4(2):e10;http://www.jmir.org/2002/2/e10
  52. Horrigan J, Rainie L. Counting on the Internet. Washington. DC: Pew Internet and American Life Project; 2002;http://www.pewinternet.org
  53. Houston T, Allison J. Users of Internet health information: differences by health status. J. Med. Internet Res. 2002;4(2):e7;http://www.jmir.org/2002/4/e7
  54. Agency for Health Care Policy and Research, Criteria for assessing the quality of health information on the Internet – policy paper, http://www.ahcpr.gov/data/infoqual.htm, 1999.
  55. Wilson P. How to find the good and avoid the bad or ugly: A short guide to tools for rating quality of health information on the Internet. BMJ. 2002;324(7337):598–602
  56. Risk A. Commentary: on the way to quality. BMJ. 2002;324(9):601–602
  57. Berg M. Patients and professionals in the information society: What might keep us awake in 2013. Int. J. Med. Inform. 2002;66:31–37
  58. Katz JE, Rice RE, Acord S. E-health networks and social transformations: expectations of centralization, experiences of decentralization. In:  Castells M editors. The Network Society: A Cross-cultural Perspective. London: Edward Elgar; 2005;p. 293–318
  59. Kommers N, Rainie L. Use of the Internet at major life moments. Washington, DC: Pew Internet and American Life Project; 2002;http://www.pewinternet.org
  60. In:  Murero M,  Rice RE editor. The Internet and Health Care: Theory, Research and Practice. Mahwah, NJ: Lawrence Erlbaum Associates; 2006;
  61. Baker L, Wagner TH, Singer S, Bundorf MK. Use of the Internet and e-mail for health care information: results from a national survey. JAMA. 2003;289(18):400–406
  62. Moyer CA, Stern DT, Dobias K, Cox D, Katz S. Bridging the electronic divide: Patient and provider perspectives on e-mail communication in primary care. Am. J. Manage. Care. 2002;8(5):427–433
  63. Pastore M. Online health consumers more proactive about healthcare. CyberAtlas. 2001;http://cyberatlas.internet.com/markets/healthcare/print/0,10101_755471,00.html
  64. Bock B, Graham A, Sciamanna C, Whiteley J, Carmona-Barros R, Niaura R, et al. Smoking cessation treatment on the Internet: Content, quality, and usability. Nicotine Tobacco Res. 2004;6(2):207–219
  65. Donald A, Lindenberg B, Humphreys L. Medicine and health on the Internet: the good, the bad, and the ugly. JAMA. 1998;280(15):1202–1206
  66. Dutta-Bergman M. Trusted online sources of health information: differences in demographics, health behavior and health-information orientation. J. Med. Internet Res. 2003;5(3):e21;http://www.jmir.org/2003/3/e21
  67. Greenspan R. Health, finance sites lack credibility. CyberAtlas. 2002;http://cyberatlas.internet.com/markets/healthcare/print/0,10101_1496801,00.html
  68. Michael DB, Christy P, Brad L, Ray M, Rosemary T, Dennis L, et al. Measuring the relevance of evaluation criteria among health information seekers on the Internet. J. Health Psychol. 2003;8(1):71–82
  69. Oravec JA. On-line medical information and service delivery: Implications for health education. J. Health Educ. 2000;31:105–109
  70. Pastore M. Consumers choose health sites with doctors’ input. CyberAtlas. 2000;http://cyberatlas.internet.com/markets/healthcare/print/0,5931_335121,00.html
  71. Stephen D, McLeod MD. The quality of medical information on the Internet: a new public health concern. JAMA. 1998;116:1663–1665
  72. Pew Internet and American Life Project . Codebook for Pew Internet and American Life's Year 2000 Tracking Dataset. Washington, DC: Pew Internet and American Life Project; 2001;http://www.pewinternet.org
  73. Pew Internet , American Life Project . Codebook for Pew Internet and American Life's Year July–August 2000 Tracking Dataset. Washington, DC: Pew Internet and American Life Project; 2000;http://www.pewinternet.org

PII: S1386-5056(05)00146-2

doi: 10.1016/j.ijmedinf.2005.07.032

International Journal of Medical Informatics
Volume 75, Issue 1 , Pages 8-28 , January 2006